Purpose
To gain a deeper understanding of the needs and desires of patients experiencing sampling, what impact it has on their lives, and the type of relationship and role they envision within the sampling process and future PCSIG initiatives, in order to accelerate adoption of more convenient and cost effective technologies and processes.
Event
PCSIG partnered with MediPaCe to host an on-line workshop with the PCSIG Patient Advisory Group in August 2024, with the aim of improving understanding of the needs & wants of patients experiencing sampling.
People
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7 patients and caregivers
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Range of experience in trials, healthcare systems, health monitoring needs, patient organisations
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Diverse range of conditions included rare, genetic, neurodegenerative, hormonal & inflammatory diseases
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From the UK, Europe & US
Process
Perspectives and insights were gathered on:
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Experiences of providing samples
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Impact of sampling on patients
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Ideas of what’s needed to make sampling easier
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How patients would like to interact with PCSIG in the future